Update - Pulmonologist

A lot has happened since the last time I posted here.

We've seen all of Hunter's specialists, had some tests done and have made some changes.

Just lately we saw Hunter's pulmonologist. She said that he is doing better than she would have expected after looking at his X-rays from the hospital. He's doing so well that she decided to turn his oxygen down to half of what it was before.

Right after the appointment with the pulmonologist we had to do a test at home where we hooked Hunter up to some gadget to measure his oxygen in his blood while he slept. It sounds like his oxygen went too low during the night so now we have him on half during the day and full oxygen at night.

She also wanted to do a formal sleep study at the hospital. We just did that the other night. Hunter had 16 electrodes attached to his head, several on his legs, straps around his chest, a tiny microphone taped to his neck and it was all wrapped up making him look like a mummy. We haven't heard any results from this yet, I think he did great though.